| Welcome to Billy's Buddies! We hope you enjoy what you read about our little medical
marvel, Billy! He's an inspirational little boy that is suffering from Infantile Spasms and
Cortical Visual Impairment. He has had a very rough time getting seizure free after all
these years, but as you will read, he is still a very happy, loving, sweet little boy with
obstacles ahead of him. If you know anyone with IS or CVI or both, you know that they
are very special people! So, enjoy the ride with us as Billy conquers IS once and for all!
Billy was born October 12, 2004 at 3:15 p.m.weighing in at 4 lbs. 7 oz. & 18 inches long.
He was Twin B, hence his first name being Billy.
His "big" brother, Tommy weighed in at 6 lbs. 10 oz. & 19 inches long.
They have an awesome older brother, Johnny who was born April 3, 2002
weighing in at 7lbs. 11 oz. & 21.5 inches long.
|About Infantile Spasms:
Infantile Spasms typically begin between 3 and 12 months of age and usually stop by the age of 2 to 4
years. They are uncommon, affecting only one baby out of a few thousand.
Infantile Spasms (also called West syndrome because it was first described by Dr. William James
West, in the 1840s), consist of a sudden jerk followed by body stiffening. Often the arms are flung
out as the knees are pulled up and the body bends forward ("jackknife seizures"). Less often, the head
can be thrown back as the body and legs stiffen in a straight-out position. Movements can be more
subtle and limited to the neck or other body parts. Individual spasms typically last for 1 to 5 seconds
and occur in clusters, ranging from 2 to 100 spasms at a time. Infants may have dozens of clusters and
several hundred spasms per day. Sometimes the spasms are mistaken for colic in early infancy.
Infantile Spasm "events" are most common just before and after waking up from sleep.
Babies with infantile spasms seem to stop developing and may lose skills that they had already mastered,
such as sitting, rolling over, or babbling.
Most children with Infantile Spasms are mentally retarded. Many doctors believe that the quicker the
seizures are controlled, the better the prognosis will be. When the spasms stop, many children later
develop other kinds of epilepsy. About one-fifth of children who have had Infantile Spasms will have
the Lennox-Gastaut Syndrome.
|If you would like to make a donation to
Billy's Buddies to help with medical
expenses, dietary expenses, equipment
Please make Check or Money Order
The Supplemental Needs Trust Fund for
P.O. Box 1323
Bellmore, New York 11710
Or use Pay Pal to make an online
Thank you very much for your